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Showing posts with label blogs. Show all posts
Showing posts with label blogs. Show all posts
Friday, 30 May 2014
Friday, 11 April 2014
by Unknown on 09:29
1 comment
Disabilities Don’t Define You
Facing life with a disability can be a challenge. Uneducated or dismissive people may discount you as a member of society, or you may feel infantilized or marginalized by well-meaning family or friends. However, you do not have to allow your disability to define you. You are a person with a disability, not a disabled person. While you may never be able to change how some people view you, you can change how you view yourself. Here are some positive ideals you should embrace to keep your disability in a healthy perspective.
Focus on Strengths
Albert Einstein once said that a fish will go its entire life thinking it is stupid if you judge it on its ability to climb a tree. This is true of people, as well. You cannot go through life focusing on areas of weakness. Find your strengths and use them to your advantage. If you are living with a visual impairment, you may decide to pursue music. For those with speech issues, writing may be a good fit. Focus on what you can do, not what is difficult.Overcome Obstacles
Confidence is built by overcoming challenges, so challenge yourself! If you have always wanted to perform on stage, finish a 5k, or travel to a foreign country, find a way to make it happen. You can break your goal down into smaller, easier-to-obtain goals to boost your confidence. Once you meet some of your goals, no matter how small, you will be able to overcome larger and larger obstacles as your confidence and belief in yourself soars.
- Photo taken from Flickr
Demand Independence
For some people with disabilities, receiving help from a caregiver or family member is essential. However, this does not mean you should allow yourself to be treated like a child. You can and should gently demand that your boundaries be respected if anyone attempts to provide help you don't want or need. This will help you feel independent and empowered, despite your disability. For example, if you are hearing impaired, there is no reason for well-meaning family and friends to take notes for you at a college lecture. You can rely on hearing aids, sign language, your professor's outline or speech-to-text software to handle your studies independently. If you are in a wheelchair and still want to drive, get a wheelchair van. There are many ways you can keep your independence.Find Your Inspiration
Inspiration can come from many different sources, such as religion or celebrities. Many famous people have overcome disabilities to achieve their goals and make their dreams come true. For example, over a dozen previous presidents of the United States have had disabilities, including hearing impairments, learning disabilities, epilepsy and post-polio syndrome. None of these men let their challenges get in their way. If you are looking for a motivational quote to tape to your mirror, the following by deafblind author and activist Helen Keller is quite apt: "Although the world is full of suffering, it is full also of the overcoming of it."Love Yourself
It is often said that you cannot love someone else until you love yourself. However, some people with disabilities may have trouble finding worth and value inside themselves. The media loves to portray anyone who is less than 'perfect' as the butt of jokes and unloveable. In reality, everyone is worthy of love. Make a list of your best qualities and read it every day. Cultivate your relationship with yourself and show yourself love by affirming your own worth and value every day.Living with a disability cannot stop you from overcoming obstacles, being independent and achieving your goals. You are not your disability, and there is no reason to allow it to define you as a person. Changing your outlook on life with a disability is imperative to setting aside bitterness and forging forward with a renewed sense of purpose and accomplishment.
Written by Paisley Hansen
Friday, 28 March 2014
by Unknown on 10:08
1 comment
In six days this UK born viral craze of #nomakeupselfies (women posting pictures of themselves with no make up) raised a staggering 8 million pounds for Cancer Research UK.
The idea behind this is that women post their #nomakeupselfies and men their #makeupselfies on social networking sites along with a caption saying that they donated to the charity by texting in which automatically donates £3 and then nominating their friends to do the same. The success of this trend will enable the charity to carry out 10 more clinical trials.
Viral sensations like this are great examples of not only the power of people on the internet but also the good spirit and kindhearted community that the online community can be.
Cancer Research, who did not initiate this campaign has said that the craze has led to a dramatic increase in the amount of donations that they receive.
Below are some examples of UK celebrities that got involved in this cause!
Left to right: Michelle Heaton, Holly Willoughby, Kym Marsh
Photograph taken from The Guardian
If you would like to donate then please give what you can by visiting the Cancer Research UK Website.
Saturday, 15 March 2014
by Unknown on 04:57
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Having just lost a close family member to a battle with cancer, i'd like to dedicate this week's post to the support and care that the Marie Curie nurses provide for those with terminal illnesses. The nurses and staff at Marie Curie have continually helped us as a family throughout this difficult time and for them to continue to help many more families in this situation they have launched 'The Great Daffodil Appeal' this March.
The Great Daffodil Appeal
Where will the money go?
“We need to raise
£10,000 every hour of every day to carry on our work…
Marie Curie has 2,000 nurses in the UK and last year they
worked for 1,300,000 hours caring for terminally ill patients, including half
of all cancer patients who die at home.
We also have nine hospices and are the biggest provider of
hospice beds outside the NHS. In total, Marie Curie spends over £93 million a
year on its charitable activities of providing care as well as on research and
development. The figure is overwhelming, but so is the comfort that the money
can provide.” – Marie Curie
Throughout the whole of March, Marie Curie are hosting the Great Daffodil Appeal whereby they are asking people to make a small donation to this cause and wear a daffodil to show their support. Since I've been wearing mine, I've started noticing so many other people out and about, on the high street and in the shops wearing theirs and showing their support.
So if you see a collector with a bucket this March, please consider throwing some of your spare change in and start sporting the daffodil! So that you can help the nurses care for more people with terminal illnesses.
Thank you for your support. x
If you would like to make an online donation you can do so via the Marie Curie website.
Friday, 14 February 2014
by Unknown on 14:25
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Dear Readers,
I've been meaning to write a post like this for a while giving you all an update about this blog and why I love writing it. As you can see by my old posts Snippet of my life - Part 1 and Snippet of my life - Part 2 (which I wrote back in 2011 around the time when I set this blog up - so please don't judge them) the part 3 update is well over due! So for that I apologise.
I started this blog back in 2011 at the age of 16 after
being diagnosed with Ehlers Danlos Syndrome type 3. For those of you that don't
know, EDS is currently an incurable hereditary condition in which
the collagen in the body is too stretchy resulting in loose ligaments in the
joints. This causes a great deal of pain as well as subluxations and
dislocations of the joints. But for many sufferers such as myself, EDS is a
physically invisible condition and so we look "normal".
I found it hard to comprehend how it could take 16 years for
me to be diagnosed with a condition that I was born with and had pretty much
always shown symptoms of. But finally after numerous misdiagnosis' and trips
back and forth to various specialists I was relieved when I finally received
the correct diagnosis.
I realised that it took this long as EDS is not only a rare
condition but also an invisible one. Therefore many people with the condition,
including myself appear completely fine. So, on one quiet Sunday evening back in
2011, I thought i'd set up a blog about EDS and other invisible conditions to
help raise awareness, offer support to sufferers and educate others!
So here we are now - 3 years down the line. Showcasing a variety
of posts from interviews, to helpful websites, video links to event pages and I've received almost 50,000 web page hits from you guys across the world, which for such a small blog about such a specific thing is crazy.
We're also on other social media including a Twitter page which has just
reached over 1,000 followers.
I cannot thank you guys enough for your contributions,
feedback and your interest in what I write about. This blog is going from
strength to strength and I've learnt a lot along the way and there is still so
much more content to come.
So in a nutshell, for me this blog is about sharing useful
tips, links and helping someone else other than ourselves. There is always
someone worse off. But I will try to give you more updates like this from time
to
time.
Abi x
For more info about my story, please check out my new website!
Sunday, 25 August 2013
by Unknown on 12:00
No comments
As part of our attempt to raise awareness about all invisible conditions we're starting off with Fibromyalgia...
So what is Fibromyalgia?
So what is Fibromyalgia?
Fibromyalgia is a chronic condition of widespread pain and profound fatigue. The pain tends to be felt as diffuse aching or burning, often described as head to toe. It may be worse at some times than at others. It may also change location, usually becoming more severe in parts of the body that are used most.
The fatigue ranges from feeling tired, to the exhaustion of a flu-like illness. It may come and go and people can suddenly feel drained of all energy – as if someone just “pulled the plug”.
The name fibromyalgia is made up from “fibro” for fibrous tissues such as tendons and ligaments; “my” indicating muscles; and “algia” meaning pain. - taken from Fibromyalgia Association UK
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A video created to help raise awareness about Fibromyalgia:
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Local Support Groups in USA and across Other Continents.
If you're interested in helping to raise awareness about Fibromyalgia then click this link to find out how you can get involved in awareness day events near you, wherever you are in the world! If you're situated in the USA click here to find events in your State!
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Finally, if you'd like to know more information about Fibromyalgia please see our previous blog post about Fibromyalgia Awareness Day 2013!
Sunday, 18 August 2013
by Unknown on 04:40
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We're aware that a lot of our content has been about invisible conditions that we're most familiar with, that's why we want to branch out and not only educate others but also educate ourselves about the invisible conditions that we know little about!
To do this, we shall feature weekly content about all kinds of conditions with a new post being uploaded every Sunday. Some weeks we shall focus on an individual condition including content ranging from videos to personals stories, facts to useful links whereas in others we shall feature collaborations and events that are happening across the world to help raise awareness!
We really want to branch out and reach as many people across the world as possible educating them about all kinds of invisible conditions and we'd love you to share your stories to help educate us.
Over the next year we shall feature posts about as many invisible disabilities as possible from the picture below. Starting with next weeks post on Fibromyalgia. If you would like to contribute your useful links, personal stories or anything you think others should know about the condition please email it to: hideandseekid@hotmail.co.uk
Saturday, 10 August 2013
by Unknown on 11:11
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Hello All...
- We're working on some exciting projects and collaborating with some great people which we're excited to share with you all soon.
- We'll keep you updated about what we're up to on all of our platforms so make sure you're following us on Twitter and have liked our Facebook page.
- If you have anything you'd like to include in our future weekly blog posts or just want to give us some feedback on our new look then we'd love to hear from you. Just email us at hideandseekid@hotmail.co.uk.
P.S. We're new to all this blog design stuff so we'd love to know what you think of it by emailing us at hideandseekid@hotmail.co.uk, and don't worry we do know that a few bits still need tweaking!
Friday, 24 May 2013
by Unknown on 07:37
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As part of EDS awareness month many of you have been doing your bit by creating videos and putting them up online to share with others. There have been so many contributions so it has been really hard shortlisting some of our favourites to share with you but here they are!
Cherylee Houston who plays Izzie Armstrong in Coronation Street suffers with EDS so when the EDS UK had chance to go and meet the cast they wasted no time in showcasing their support for the cause.
British TV Soap Opera - Coronation Street:
Cherylee Houston who plays Izzie Armstrong in Coronation Street suffers with EDS so when the EDS UK had chance to go and meet the cast they wasted no time in showcasing their support for the cause.
Your Videos:
This is a song called 'The Cure' which was created by a young girl called Kitty Richardson about her struggle with EDS.
This is a video created by Heather or 'Zebra Wheels' as she's known in the community about her life with EDS.
Our Video Contribution:
Here is a short film that we created to help raise awareness about invisible conditions!
Here is how Natalia Carrasco is trying to raise awareness, she's creating daily EDS facts and posting them online for us all to share. Please see our previous blog post for more facts:
Sunday, 5 May 2013
by Unknown on 08:33
No comments
As May is EDS awareness Month every friday we will post a new blog post with updates about how people from across the world are helping to raise awareness! We'll hopefully be featuring all kinds of content from poems, to personal stories, events to images....
So if you're helping to raise awareness about EDS this month please what you're doing by sending us an email at hideandseekid@hotmail.co.uk
Also, Natalia Carrasco is helping to raise awareness by posting 31 facts about EDS for the 31 days in May. We'll be sharing these in all of our blog posts throughout the month. Here are the first 5!
Don't forget to subscribe to our future posts by selecting the subscribe option on the right hand side bar, follow us on twitter and like our Facebook page!
Oh, and our blog has now had over 30,000 hits so a massive thank you to all of you for your support in helping us to raise awareness about invisible conditions!
Saturday, 30 March 2013
by Unknown on 08:07
No comments
Find Me Good Care ...
This week's post is dedicated to Find Me Good Care, a charity that aims to help people in their struggle to find the good quality care that their family member or indeed themselves may need. The first stumbling block is often finding where to start? It's especially hard if you don't know what sort of care and support is available or what they specifically need. Find Me Good Care was established to help people in these situations and includes advice and guidance on what to look for, how to pay, what you options are etc, as well as a local directory service where users can provide feedback.
The user friendly website www.findmegoodcare.co.uk can be tailored to individual needs; users can type in their postcode, specify what type of care they are looking for, and the results will return local services and council contacts. There is also lots of useful information for specific care needs.
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Ann Macfarlane OBE, leading Disability Rights and Equalities Consultant: “The main issue with finding and paying for care is that regardless of how much or how little funding you have available, you need good information and advice on spending it wisely. It’s taken me a long time to work out how the system works, which is why something like Find Me Good Care is really helpful for people. Many newly disabled people aren’t as aware of what their options are, and social care is just one of the systems that a person who requires support might need to understand.
Andrea Sutcliffe, Chief Executive of SCIE: “We know that the care system can be confusing and our research has confirmed that most people are unaware of their options - that’s why we’ve created this service. We have brought together comprehensive advice and guidance to help people take those all-important first steps in navigating the care and support system.
Oh and finally, hope you all have a great Easter and stay tuned for next week's Sunday post!
Sunday, 10 March 2013
by Unknown on 16:00
No comments
This is a post to remember the success of Rare Disease Day 2013 where over 70 countries across the world took part in a variety of ways to help raise awareness about rare diseases. This post will showcase some of the events and highlight the success of the day!
But first...
So, what actually happened?
On 28th February, thousands of people across 71 countries took part in helping to raise awareness. Support grew across the globe as this was the largest number of countries participating throughout the 6 years that it has been running. A variety of events were held ranging from conferences, to radio shows, sponsored runs to cake sales! Everyone pulled together and worked as a team. The day got great media coverage across the globe and opened up a lot of people eyes to what rare and invisible conditions exist.Click the link here to see how each and every country played their part!
Also, make sure you check out the Official Rare Disease Day 2013 video below:
If you didn't know about Rare Disease Day this year but wish you had got involved fear not as you can certainly get involved with Rare Disease Day 2014! Keep up to date on their twitter and facebook for the latest info as well as their website!
Next Week's Post will feature the UK service 'Find Me Good Care'.
Friday, 25 January 2013
by Unknown on 04:57
No comments
This is just a quick blog post about why this platform has been so quiet in recent months...
Like many of you, my life has been hectic over the Christmas period! I recently started University, moved out of home for the first time and celebrated my 19th Birthday. However, with 2013 bringing in a new year, I aim to keep the weekly blog posts going for as long as possible and for as long as you guys want to read them!
There shall be new material every week about useful website for help coping with invisible conditions, individual personal stories, or just some amusing yet inspiring images and slogans! Thanks so much to everyone that has got in touch with some ideas so far about future blog posts and there are some great ideas in the pipeline.
However, I'm always after more suggestions. So if you have some information or know of a web link that you depend on and helps with your condition, get in touch via hideandseekid@hotmail.co.uk and I'll post it to share with others! Likewise, if you're after some further help feel free to email over a summary of what you're asking and we'll all see what we can do!
Thanks again for sticking with the blog, and for the great feedback it has had so far.
Remember to keep in touch on twitter: @hideandseekid and on facebook: HideAndSeek Disabilities
Next Blog Post: "Rare Disease Day 2013!" will be up soon!
Saturday, 12 January 2013
by Unknown on 06:54
No comments
Hello everyone! First of all, i'd like to apologise for the significant lack of posts in recent months, the reasoning behind this shall all be explained in an upcoming blog post. However, we're back now with weekly content being uploaded!
That's right...
a new blog post will be uploaded every friday 1pm UK time!
I'm looking for your suggestions and contributions to be uploaded. Whether its a personal story about coping with the hectic Christmas period, some useful info you've recently come across or some inspiring and encouraging messages we'd love to hear from you!
Get in touch via email: hideandseekid@hotmail.co.uk or tweet us: @hideandseekid!
This is your chance to help us to reach out and raise awareness about invisible disabilities.
Also, i'll be changing the layout of the blog so do let me know what you think!
Please share this blog post with your friends and family to let everyone know that we're back up and running, raising awareness about invisible disabilities.
Thank you.
Next Blog: "Why so quiet?" will be up on Friday 18th Jan!
Friday, 26 October 2012
by Unknown on 05:25
No comments
We are very sorry for the lack of posts and content recently but there will be a big update coming soon explaining our absence!
We will relaunch the blog in January and will post every Wednesday of each week!
In no way has his blog or this cause been forgotten!
Stay tuned for future updates.
Tuesday, 11 September 2012
by Unknown on 05:04
No comments
Social Sites
Today's post will be about the various social platforms that you can check out to help raise awareness for Invisible Illness Week. As mentioned yesterday you can check out their twitter and Facebook page, but what can you say?
Well here you can draw up some inspiration from some of the many blogs featuring posts about the Invisible Illness Campaign:
Witty Gritty Invisible Girl - www.therevertedbutterfly.blogspot.co.uk
Seeking Equilibrium - www.rosemaryl.blogspot.co.uk
Merry - www.hopeismyanchor.com
These are just a few of the great blogs where you can gain inspiration and knowledge about all kinds of invisible conditions, so make sure you check out the Invisible Illness website and see some others!
And ofcourse make sure you download a blogger badge!
So yesterday I told you to tweet..but what can you tweet about?
Well here are some of the 'Things to Retweet' suggested by the Invisible Illness Website. You can find more facts and statistics on the website!
"Facts to Tweet About Invisible Illness
RT @invisibleillwk #iiwk12 Fact #1 Nearly 1 in 2 Americans (133 million) has a chronic condition. Not U? It’s someone U luv! http://ow.ly/6Otw
RT @invisibleillwk #iiwk12 Fact #2 About 96% of illnesses are invisible. No visible signs and no assistive device used. http://ow.ly/6Otw
RT @invisibleillwk #iiwk12 Fact #5 Plp with illness are young! 60% are between the ages of 18 and 64http://ow.ly/6Otw
RT @invisibleillwk #iiwk12 Fact #6 By 2020, about 157 million Americans will be afflicted by chronic illnesses. http://ow.ly/6Otw
RT @invisibleillwk #iiwk12 Fact #7 90% of seniors have at least one chronic disease and 77% have two or more chronic diseases. http://ow.ly/6Otw
RT @invisibleillwk #iiwk12 Fact #8 Depression is 15-20% higher for the chronically ill than for the average person. http://ow.ly/6Otw
RT @invisibleillwk #iiwk12 Fact #11 Invisible illness includes #autism, #bulimia, #migraine pain, #arthritis, #bi-polar disorder #depression. http://ow.ly/6Otw
RT @invisibleillwk #iiwk12 Fact #15 19 million of plp who are severely disabled do not use a wheelchair, cane, crutches or walker http://ow.ly/6Otw
RT @invisibleillwk #iiwk12 Fact #19 Over half of the chronically ill say the worst thing someone can say is “you look great.” http://ow.ly/6Otw"
Monday, 10 September 2012
by Unknown on 04:02
No comments
Sorry for the lack of posts recently.. but like many of you we have been engrossed with the success of the paralympics! Just before we get on to the main topic of today, we'd like to echo all of those comments and congratulate all of the Paralympian athletes that took part in the game, they were a true inspiration to all!
Some of you may know that to show our support for Invisible Illness Awareness week (which is this week!) we are uploading a new blog post every day! So today's blog post is...
An Introduction
Many of you may have come across Invisible Illness Awareness Week (#iiwk12) but for those that haven't here is a quick recap. It is a week dedicated to raising awareness about invisible conditions. This week there is loads of stuff going on online which you can get involved with to help raise awareness!
Including...
1) Tweet @invisibleillwk with the hashtag #iiwk12 and help get Invisible Illnesses the recognition they deserve!
2) Tune in to the virtual conferences on the Invisible Illness Week website!
3) Blog about the week and link it to their website where you can read other entries!
4) Like their Facebook page - http://www.facebook.com/InvisibleIllnessWeek
5) Share this image:
There are many more ways in which you can get involved so make sure you check out their website and tune in here everyday this week from 10.00am BST to read our latest blog post about #iiwk12!
Friday, 31 August 2012
by Unknown on 10:00
No comments
Before I explain more about 'News On Wheels'.. here is a quick social network update from HideAndSeek.
Make sure you follow us on twitter: @hideandseekID
Like our Facebook Page: HideAndSeek Disabilities
Drop us an Email: hideandseekid@hotmail.co.uk
News On Wheels...
News On Wheels is an iniativie set up by Blake Leitch who is trying to encourage 'disability journalism'. This would involve disabled people writing content about current issues or offering advice to others in a similar position to themselves. You can find out more about Blake's initiative by checking out his website: News On Wheels and we'll feature more about our involvement with Blake's project soon!
Friday, 24 August 2012
by Unknown on 05:16
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With our technical issues sorted, our blog is back up and running with new posts up every Friday!
This documentary by Kat Williams showcases families in need and what help is available out there for them. Most importantly of all, it helps to raise awareness about invisible conditions and how important a diagnosis is when trying to cope and comprehend with your condition.
Now that's enough from me... I'll let the documentary do the talking...
Follow us on twitter: @hideandseekid
@withoutadiag
@swan_uk
Wednesday, 4 July 2012
by Unknown on 02:42
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About Invisible Illness Week 2012
September 10-16, 2012 is National Invisible Chronic Illness Awareness Week. This annual event, started in 2002 by Lisa Copen, features a variety of ways to get involved including a virtual conference September 10-14 online for free with speakers.
Below are some videos from the Invisible Illness week campaign
Stay tuned for many more posts about Invisible Illness Week 2012! #iiwk12
New post up later today: #iiwk12 - My 30 things meme
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