The Jolt Trust Charity

If you read our inspiring guest blog posts from Emily Yates you'll be familiar with the charity organisation she mentioned called Jolt Trust. We're really interested in what this small charity offer to disabled people and what they have already achieved. So we'd like to share some more info about the Jolt Trust movement with you...

"Since 1983, the Journey of a Lifetime Trust (JoLt) has been making a positive, lasting difference to the lives of hundreds of disabled, ill, abused and neglected young people. JoLt is a small charity run on a totally voluntary basis by a group of ordinary people with families and careers. It was set up in 1983 to make a positive lasting difference to the lives of disabled, ill, neglected and abused young people.Every two years, we organise expeditions all over the world for groups of young people (from fourteen to twenty one years) with significant disadvantages. All long to travel to far-away places. JoLt makes their dreams come true." - JoLt Website

Sounds amazing right? Fancy getting involved?

Well there are many ways you could help to get involved with this charity and their work. First of all is by donating so that they can continue to offer these fantastic expeditions for the disabled youngsters in years to come. If you'd like more information about this please click here.

Or you could nominate a youngster to be considered for taking part in the 2014 expedition across Africa!

"We are busy planning our next journey for July / August 2014. We aim to travel from the heart of Africa to the Indian Ocean. We will start our travels in Zambia, before heading through Botswana, South Africa, Swaziland and arrive in Mozambique a month later. We will take in the mighty Zambezi River and Victoria Falls before entering Botswana, the gateway to the Okavango Delta. South African highlights include the world famous Kruger National Park and Blyde River Canyon. The Kingdom of Swaziland will be the location for a community project and some exciting trekking, before arriving on the beaches of Mozambique to complete our journey." - JoLt Website

For more information about how to nominate please click here!

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Emily Yates: Q+A - Part 2

After reading about Emily's incredible story so far we decided to ask her some questions about her involvement at London 2012 and what her plans are for the future. Here is our short Q+A session with her...

1. As a wheelchair user, how did you find the facilities and accessibility at The Games?

I thought it was incredible.  Not only were the facilities great, they were so great that I honestly did not have to put in any extra effort compared to an able-bodied person.  The lifts and toilets were conveniently placed; everything was lovely and flat, with vehicles to help you out if you struggled with distance.  Most of all, though, there was always someone willing to help you out if you needed it.  Such an inclusive, wonderful atmosphere.

2. Would you encourage a disabled person to apply to be a volunteer at The Games and why?

Absolutely, and why not?  Everything you could possibly need will be available to you.  You will make friends that you immediately have a bond with, as you are all volunteering for the same reasons: to have fun, and to make a difference to the success of the event and the enjoyment of the athletes.  I'd even say that I had an advantage working as a disabled volunteer at the Paralympics. I felt that, a lot of the time, I was able to communicate well with athletes who had similar disabilities, and they were equally confident that I would be able to help them out.  My wheelchair also fell apart during one of my shifts, and I couldn't have been in a better location for it to be mended by all the amazing technicians!

3. What is your favourite memory from working at London 2012?

There's so many! Of course, meeting Seb was incredible, as was being mentioned in his speech.  What I remember most, though, is the constant buzz that surrounded London.  Everyone was vibrant and happy; it made working at the Games an absolute joy.

4. What advice would you give to a disabled person that is considering applying for tickets to Rio?

Read the accessible guide I'm writing, which will hopefully tell you all you need to know about making the most of your time there!

5. Tell us a bit about your book 'An Accessible Guide to Rio' and when can we get our hands on a copy?

Right now, the guide is still in the very early stages. The aim, though, is to create a fully comprehensive guide that will help those with varying disabilities to get the most out of their time in Rio. It'll let you know where is good to visit, where you can rest your head after a busy day, and where you can go to party with ease!  Of course, there will be lots of information about accessible transport and tourist attractions, too.  And it won't just be suitable for those with disabilities either.  The elderly and families with children in pushchairs may also benefit from it, too.  If all goes to plan, we are hoping that the guide will be distributed free of charge through disability organisations and networks, so that the guide really does hit its target audience!

Emily's Twitter: @EmilyRYates

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Emily Yates: 'Journey of a Lifetime' - Part 1

- Emily and Seb at London 2012

- Emily and her friend Tom with 

The One Show's Alex Jones

Me and my twin sister, Lucy were born 10 weeks prematurely, and later diagnosed with Cerebral Palsy, after not being able to walk for quite a while when we were young.  My early memories are of constantly walking up and down the stairs at our local Children's Development Centre to try and strengthen my legs.  We had a lovely childhood, and loved school.  I don't remember our disability ever affecting us, how we made friends, or our outlook on life.

At 9 years old, I had an operation to improve my walking, as it was getting so bad that my knees started to knock together and my posture was worsening.  I had Derotational Osteotomy where my thigh bones were cut and pinned back together.  My hamstrings were also lengthened.  This huge procedure took quite a while to recover from, and I lost all the muscle tone in my legs, leading me to use a wheelchair.  I have no recollection of this change ever really bothering me; I was actually much more mobile with the wheelchair, and I started playing wheelchair basketball locally and at county level.  I remember my wheelchair even being quite cool when I started secondary school!  Again, apart from a few issues with school trips and risk assessments, my time at school was so enjoyable. I did well in my GCSEs, and decided to stay on at 6th form, with the hope of attending University.

In the summer of 2008, at the age of 16, I as given an amazing opportunity which would change my life forever. I was nominated by my school to go to southern Africa (Namibia, Lesotho and South Africa) with the JoLt Charity, an incredible organisation that takes disabled or disadvantaged young people on a literal 'Journey of a Lifetime'.  Here, I met people with similar life experiences and similar ambitions.  Together, we did things that we'd never imagined would have been possible.  We rode elephants, went cage diving with sharks, and climbed some of the highest sand dunes there are! I immediately got the travel bug, along with 30 life-long friends.

After JoLt, I was determined to travel some more. After my A Levels, I went to the Sinai Desert with the Yorkshire Schools Exploring Society, and was the first wheelchair user they'd ever taken on a trip.  I was also the first wheelchair user to ever cross the desert on camel! Whilst in the area, we also completed our PADI Open Water Scuba Diving course - a real challenge for me - but it was so worth it.

After Sinai, I moved to London after being accepted to study English at Queen Mary, University of London.  I totally fell in love with London, and all the opportunities it has to offer, and I adored student life!  It was half-way through this fresher year that I was accepted to move to Melbourne, Australia for a year studying abroad.  Going to the other side of the world was quite a scary thought, but I was ready for the challenge. In Australia, I snorkelled at the Great Barrier Reef, volunteered at a juvenile prison, and met another wheelchair user, Alex, who was to become my travelling partner for the year.  Of course, I managed to fit a little study time in, too...  Urging myself to grab such a once-in-a-lifetime opportunity like moving to Australia is something that I'm so proud of.  It would have been so much easier to sit back and stay in my comfort zone, but taking that risk was the best thing I've ever done.

I returned to London in July 2012, after heading from Australia to America to intern at the United Nations in New York.  It was at this time that I received a call from the London 2012 team, saying that my application to be a Games Maker at the Paralympic Games had been successful.  The day before my first shift, I got another call, asking me if I would talk at a press conference the following morning.  I said yes, thinking nothing else of it.  But, lo and behold, I arrived that morning to be greeted by Lord Sebastian Coe - we'd be doing the conference together in front of loads of journalists!  I told them all how amazing the Games had been for those with disabilities, 'lifting the cloud of limitation' on everything that they thought was previously possible.

I then worked at the Excel arena, working as a Games Maker in the warm-up team for Wheelchair Fencing.  I absolutely loved it.  We got the chance to take athletes out onto the field of play, and then take photos with them and their medals!

Seb then went on to use my 'cloud' quote in his closing ceremony speech of the Paralympics.  My phone was going mad with calls and texts - I couldn't believe it!  My friend Tom and I had previously spoken about how great it would be to write an accessible travel guide for the next set of Games at Rio 2016, and this was suddenly our opportunity.  I quickly got in touch with Seb and the team at the British Paralympic Association, both of whom have supported my ambition to create the guide right from the start.  I am now writing the guide in association with Dorling Kindersley and Rough Guides.  We are currently trying to raise sponsorship so that we can distribute the guide free of charge to those who will benefit the most from it. I'm also about to start a Master’s degree in Disability Studies at the University of Leeds, and I'm hoping that my dream to help others with disabilities to embrace the idea of travelling the world really makes a difference!

I am so fortunate to have been given so many wonderful opportunities, and each one has led to another one.  To anyone reading this, the only advice I can give is to urge you to say 'yes' to any exciting offer that is made to you; you never, ever know where it might lead!

 - Twitter: @EmilyRYates

Next week's blog post will feature a short Q+A with Emily about her experiences at London 2012 and her plans for the future - so stay tuned!

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INVISIBLE DISABILITIES #1: Fibromyalgia

As part of our attempt to raise awareness about all invisible conditions we're starting off with Fibromyalgia...

So what is Fibromyalgia?

Fibromyalgia is a chronic condition of widespread pain and profound fatigue. The pain tends to be felt as diffuse aching or burning, often described as head to toe. It may be worse at some times than at others. It may also change location, usually becoming more severe in parts of the body that are used most.

The fatigue ranges from feeling tired, to the exhaustion of a flu-like illness. It may come and go and people can suddenly feel drained of all energy – as if someone just “pulled the plug”.

The name fibromyalgia is made up from “fibro” for fibrous tissues such as tendons and ligaments; “my” indicating muscles; and “algia” meaning pain. - taken from Fibromyalgia Association UK

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A video created to help raise awareness about Fibromyalgia:

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Mission Statement: The National Fibromyalgia & Chronic Pain Association unites patients, policy makers, and medical and scientific communities to transform lives through visionary support, advocacy, research and education to develop affordable and accessible treatments and cures for fibromyalgia and chronic pain illnesses.  - NFMCPA 

Local Support Groups in USA and across Other Continents. 

If you're interested in helping to raise awareness about Fibromyalgia then click this link to find out how you can get involved in awareness day events near you, wherever you are in the world! If you're situated in the USA click here to find events in your State!

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Finally, if you'd like to know more information about Fibromyalgia please see our previous blog post about Fibromyalgia Awareness Day 2013!

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INVISIBLE DISABILITIES: Branching Out!

We're aware that a lot of our content has been about invisible conditions that we're most familiar with, that's why we want to branch out and not only educate others but also educate ourselves about the invisible conditions that we know little about!

To do this, we shall feature weekly content about all kinds of conditions with a new post being uploaded every Sunday. Some weeks we shall focus on an individual condition including content ranging from videos to personals stories, facts to useful links whereas in others we shall feature collaborations and events that are happening across the world to help raise awareness!

We really want to branch out and reach as many people across the world as possible educating them about all kinds of invisible conditions and we'd love you to share your stories to help educate us.

Over the next year we shall feature posts about as many invisible disabilities as possible from the picture below. Starting with next weeks post on Fibromyalgia. If you would like to contribute your useful links, personal stories or anything you think others should know about the condition please email it to: hideandseekid@hotmail.co.uk

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UPDATE: Blog Relaunch!

Hello All... 

This is just a quick message to say sorry that we've been a bit quiet the last few weeks on all of our social platforms we're currently working on the re-branding and relaunch of our blog for you guys (as you can see by our new blog layout, what do you think?)

• We're working on some exciting projects and collaborating with some great people which we're excited to share with you all soon.

• We'll keep you updated about what we're up to on all of our platforms so make sure you're following us on Twitter and have liked our Facebook page. 

• If you have anything you'd like to include in our future weekly blog posts or just want to give us some feedback on our new look then we'd love to hear from you. Just email us at hideandseekid@hotmail.co.uk.

P.S. We're new to all this blog design stuff so we'd love to know what you think of it by emailing us at hideandseekid@hotmail.co.uk, and don't worry we do know that a few bits still need tweaking!

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EDS Awareness Month - Week 3 - Awareness Videos

As part of EDS awareness month many of you have been doing your bit by creating videos and putting them up online to share with others. There have been so many contributions so it has been really hard shortlisting some of our favourites to share with you but here they are!

British TV Soap Opera - Coronation Street: 

Cherylee Houston who plays Izzie Armstrong in Coronation Street suffers with EDS so when the EDS UK had chance to go and meet the cast they wasted no time in showcasing their support for the cause.

Your Videos:

This is a song called 'The Cure' which was created by a young girl called Kitty Richardson about her struggle with EDS.

This is a video created by  Heather or 'Zebra Wheels' as she's known in the community about her life with EDS.

Our Video Contribution: 

Here is a short film that we created to help raise awareness about invisible conditions!

Here is how Natalia Carrasco is trying to raise awareness, she's creating daily EDS facts and posting them online for us all to share. Please see our previous blog post for more facts:

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