Linky the EDS Horse!

A few weeks ago a competition took place for people to enter their designs of a horse to help raise awareness for a certain concept they believe in and the design of the winning horse will be on public display in Bristol for a few months to raise awareness.  Once the entries were in, all people had to do was to vote on Facebook by liking the picture...

Continue

#iiwk12 - my 30 things meme

Update: From now on there shall be new posts up every Tuesday and Friday. 30 things you probably didn't know about me.. Copy and paste and tell others more about yourself. Taken from www.invisibleillnessweek.com 1. The illness I live with is: Ehlers Danlos Syndrome Type 3. 2. I was diagnosed with it in the year: 2010 3. But I had symptoms since:...

Continue

Invisible illness week 2012 - September 10th - 16th

About Invisible Illness Week 2012 September 10-16, 2012 is National Invisible Chronic Illness Awareness Week. This annual event, started in 2002 by Lisa Copen, features a variety of ways to get involved including a virtual conference September 10-14 online for free with speakers. Below are some videos from the Invisible Illness week campaign Stay...

Continue

Mimi's EDS Story

Sorry for the absence of posts recently... but more updates and posts are to follow soon! Please watch the video below showing Mimi Newman telling her story about life with EDS and how she is trying to raise awareness about the condition. Follow us on twitter: @hideandseekid ...

Continue