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Saturday, 28 January 2012

"Journalist Rod Liddle has been at it again. This time the subject of his attention is the disabled. He writes in his column in The Sun newspaper, which has since "disappeared" online but Rod's cause has been picked up here in The Telegraph,.
Rod had said that his resolution for 2012 is to "become disabled". He believes that it has become "incredibly fashionable" to be disabled of late. His reasons for this: the disabled don't have to work, they get to live off benefits and get a parking badge. It has caused a bit of a storm on Twitter." - The Ouch Blog
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Read my latest article about the prejudices you may face living with an invisible disability "Living with the less obvious"

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Wednesday, 25 January 2012

Check out our latest article published on the patients voice website.

Want to share your views? Comment, like and share.

Monday, 23 January 2012

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Monday, 16 January 2012

I have started writing articles for various sites and publications.

As said in a previous post my article "Don't judge a book by its cover" will feature in the February issue of Disability Now Magazine.

I am also currently writing an article "Life with EDS" for The Patients Voice for them to feature as a guest blog.

Another article is also taking shape.. details to follow soon!

Many of you  from around the world have contacted me via FB or email suggesting info to include and thank you for doing so!

If you have any info you think needs to be included about living with Ehlers Danlos Syndrome, Hypermobility Syndrome, or indeed any other invisible disabilities please email it to:  hideandseekid@hotmail.co.uk

Likewise if you would like me to write an article to feature please get in touch!

Sunday, 15 January 2012

The Independent Newspaper published this article online today: Outside the Box: Warning to managers - quadruple jeopardy of signing the double-jointed.

"Clubs about to sign players may want to make sure they are not double-jointed, which according to research from Leeds Metropolitan University almost quadruples the risk of injury.

The study found that of 54 Premier League players surveyed throughout a full season, the "hypermobile" ones suffered a rate of 22 injuries every 1,000 hours, whereas the rate otherwise was just over six.

Hypermobility is defined as having at least four abnormally flexible joints, and it is surprising how many players are in that category. It applied to a third of those surveyed, who were also 12 times more likely to sustain a "severe" injury, but one Premier League club contacted by OTB said no more than 10 per cent of their players came into this category.

Lead researcher Gareth Jones said: "If you've got to make a decision about purchasing a player, the more information you have about risk factors for injury, it may guide you to select one player above another. We believe it's an important factor and needs further investigation."

The Football Association's medical department are considering a wider-ranging survey." - The Independent Newspaper.

Surely, the possibility of ruling out a talented player because their probability of getting injured is higher due to hypermobility is a form of discrimination? 'Jointism' infact. A condition that they are born with does not affect their talent and skill which they have developed over the years. Their condition may never affect their performance and certainly shouldn't be a hindrance on their professional sporting career. 

What are your thoughts? Comment below. 

Saturday, 14 January 2012

A list of blogs - see what its like for a person to live with an invisible disability or seek advice!

Ehlers Danlos Syndrome and Gastroparesis 

Living with Ehlers Danlos Syndrome

Parallel Episodes

The Myasthenia Kid

Bad Glue

Ehlers-Danlos Syndrome - Deal With It

Would you like your blog to be featured? Drop us a comment or an email!

Monday, 9 January 2012

Thanks for the link Dom!

Saturday, 7 January 2012

The UK magazine publication Disability Now approached me and said that they'd be interested in me writing an article about invisible disabilities and what prejudices you face living with a hidden disability..

The article i have written mentions prejudices i have faced and many others with invisible disabilities have encountered.

So make sure you have a read! 
The article will feature in the February issue of Disability Now Magazine! 

Sunday, 1 January 2012

Happy New Year!

The countdown is finally over, 2012 is here! I wish you all a happy and hopefully pain free (wishful thinking I know) New Year! However you saw the new year come in I hope you enjoyed it and heres to 2012, a year of happiness and hope!

2012 in the UK

The Queen's Diamond Jubilee

Olympic Games 

And of course .... The Paralympic Games