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Sunday, 25 September 2011

A fellow EDS sufferer created this video to inform others and raise awareness, click the link! :)

Tuesday, 20 September 2011

Really useful info about EDS and what it is like to live with, thanks Sara :)
Here is a link to another great blog that gives informs about what life is like with invisible disabilities like EDS, Dysautonomia etc from the perspective of someone who has the conditions. Take a peek!


Monday, 19 September 2011

I've set up a twitter so that info and advice about Invisible Disabilities can be shared on there..

Follow and tweet us at @hideandseekid

Tweet tweet!
Up until recently I knew little about the condition Hidradenitis Suppurativa (hope I spelt that right) otherwise known as HS but Peter has found two useful links to share with any HS suferrers that need that extra bit of guidance and support...

Perspective of a HS sufferer

Facebook group - Hidradenitis Suppurativa Friends

Thanks Peter! :)

Sunday, 18 September 2011

Do you have an invisible disability? Want to share your story, images and useful links? Or just offer general advice? Then get involved!

Email your contribution to the blogs email address at hideandseekid@hotmail.co.uk and I'll post your contribution asap!

More stories coming soon...
Thanks for suggesting these links Sara :) , i've had a browse and they most definitely should be shared on this blog!

Website: http://www.cedsa.org/ 

Thanks Sara! Make sure you check them out!

Saturday, 17 September 2011

Some youtube links that help explain about EDS... have a gander!

Just thought I'd share some links with you guys that have helped me with my condition :), you never know they may help you!

The Hypermobility Syndrome Association 

Website: http://www.hypermobility.org/

- I've found this site very informative and a great way to hear about how others cope!

Zebras For Life

- a great facebook group to chat to others with EDS!

EDS Today

- another great facebook group to chat on!

Hmmm, I know what you're thinking, why youtube? Find out in the next post...

Oh, and if you know of any other links or sites for invisible disabilities that you have found helpful, tell me them and i'll put them up :)
So what's the point of this blog? It's not to rant and rave (although I probably will a little) or to get others to 'feel sorry for me', not atall. It's to educate others about EDS and for me to learn more about other invisible disabilities.

I'd like this blog to be a support network where those who suffer from invisible disabilities can share advice and tell their stories to others that may be in a similar situation or may just be interested in learning more...

Essentially, it's an easy access virtual area to gather helpful information about all kinds of invisible disabilities! So get in contact via the comment section if you want me to feature your ID story :) ...
Hi, my name is Abi and i'm from the UK. I'm pretty 'normal' in the sense that I love spending time with my friends and family whethere it be going out or just chilling out and I like my sports.

Physically I look 'normal' but I have an invisibile heridatory condition called Ehlers Danlos Syndrome (EDS) which I was finally diagnosed with in June 2010 after 7 years or so of suffering from the symptons. Although my condition is a part of me, it in no way defines me, so i'm experimenting with this blog and hope to learn a bit about all (if any) of you reading this. :)