Rare Disease Day 2012 - 29th February!
This year Rare Disease Day is on the 29th February, there will be events all around the world to advertise and raise awareness about rare diseases on this day. There will be a lot of media coverage across the globe and you can get involved!
Rare Diseases Day 2012 in the UK
The Royal Holloway University of London will be hosting an event whereby there will be presentations and representatives of many charities that support a variety of rare diseases. Some of the exhibitors include:
- The Jennifer Trust for Spinal Muscular Atrophy
- Rare Disease UK
- The BioScience Student Society, Royal Holloway
- The Educational Support Office, Royal Holloway
- Action Duchenne
- AKU Society
- DebRA
- Sparks
- Tuberous Sclerosis Association
- Genetic Alliance UK
- Ciliopathy Alliance
- PKD Charity
- Ehlers-Danlos Support UK
- Myasthenia Gravis Association
- Muscular Dystrophy Campaign
- BHD Foundation
- For more information about this event and how to attend please click on the following link: UK Rare Disease Day 2012
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