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Wednesday, 16 May 2012

Why do we see zebras when reading about rare and invisible conditions like EDS? Good question...  In medical school, students are taught to diagnose patients based on the condition that’s most likely.  This makes sense.  Why attempt to diagnose something rare when the answer is right under your nose? This idea goes along with the saying: When you hear...

Monday, 14 May 2012

May is Ehlers Danlos Syndrome awareness Month! This is an invisible condition that I suffer with and little is known about it around the world not only amongst the public but also professionals. Below is more information about EDS taken from the EDNF website. What is EDS? Individuals with EDS have a defect in their connective tissue, the tissue that provides...
Here is some invisible disabilities that we learnt a bit about on our #invisibledisabilities day! Myalgic Encephalomyelitis (ME) - ME is recognised as a neurological illness by the World Health Organisation. It is a real, often relapsing, debilitating illness, affecting up to 150,000 people in the UK, with similar rates of incidence in Europe, USA,...

Sunday, 13 May 2012

On Friday 4th may, our #invisibledisabilities day we reached 10,000 hits on the blog! Thanks so much for everyone who supported us and got involved, helping us to reach our target. We're now well on our way to the 11,000 mark and 20,000 is our next goal! Keep posted as there shall be many updates to come about invisible conditions.  Keep spreading the word about...

Thursday, 3 May 2012

Tomorrow is our #invisibledisabilities day, so if you're on twitter use the hashtag #invisibledisabilities all day if possible but mainly at 6pm (BST) to help raise awareness about all kinds of invisible conditions! If you're on facebook, google+, pinterest, or whatever social network you're on, talk about the #invisibledisabilities initiative and educate others...