Haven't had a hospital appointment in a few months now, makes a change from the practically weekly visits - however I do feel a tad lost in the system. The best hospital treatment I get is meeting my friends that I get together with monthly in a Chronic pain support group in London. However...
extortionate train prices + physical fatigue = me missing the meetings :(
But I still keep in regular contact and shall hopefully see them all soon :)
My latest EDS achievement?
In an attempt to get my previous strength and ability back I have started going to the gym. I know what you're thinking, "urgh, too much hardwork" and yes, I agree, it does make my joints ache but I find the longterm improvements worth the pain :)
I have just started my gym routine and once I have devised a structured exercise plan I shall let you know how its going in 'A snippet of my life (part 3)'.
Abi :)
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