#invisibledisabilities day template!

Yesterday, Saturday 21st April, I was part of a group of about 20 people that initiated a worldwide trend. If we can get as much twitter coverage as possible on Friday 4th may and tweet with #invisibledisabilities we can help raise awareness about all the invisible conditions! PLAN: At 6pm GMT on Friday 4th May tweet with #invisibledisabilities to raise...

Continue

Plan: 4th May #invisibledisabilities day!

We can't find a specific day that is dedicated to Invisible Disabilities! So we created our own one. 4th May is our #invisibledisabilities day! Aim: Raise awareness about invisible disabilities Who: You and everyone else we can get on board! How: In the lead up to the 4th May and definitely on that day tweet with the #invisibledisabilities - and educate others about...

Continue

Alphabet Initiative - A

There are loads of Invisible Disabilities out there that we know little about so we want you to educate us about your condition! We're starting with the letter A, if you have any of the below drop us an email describing your condition and how it affects people! ADHDAnxiet DisordersArachnoiditisAsperger SyndromeAutis...

Continue

This is why we need to raise awareness!

"I've learned now how it's quite common for the parents of EDS sufferers to be accused of child abuse but, at the time, it came across as quite scary." "A MOTHER was suspected by social services of abusing her children – until they were diagnosed with a rare disease which makes them susceptible to bruising and bleeding. Abi Willshee said she was "very worried"...

Continue

3rd April: Meeting about filming for EDS and Chronic awareness!

I've been invited to meeting in London on Tuesday 3rd April about filming a campaign video about how chronic pain and EDS affects people to raise awareness. Once filmed the video shall be featured on the UCH website for all to access including teachers, parents and pupils. In the meeting we shall discuss how life with chronic pain and EDS affects us. So if you suffer with...

Continue