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Friday, 24 May 2013

As part of EDS awareness month many of you have been doing your bit by creating videos and putting them up online to share with others. There have been so many contributions so it has been really hard shortlisting some of our favourites to share with you but here they are! British TV Soap Opera - Coronation Street:  Cherylee Houston who plays Izzie Armstrong in Coronation...

Friday, 17 May 2013

This week's post is dedicated to some of the main symptoms that people with EDS suffer with.  Hypermobile joints People with EDS typically have loose joints, which means the limbs bend more than usual. This can cause floppy joints in infancy, and some affected children take longer to sit, stand and walk. Hypermobility EDS is the most common form....

Sunday, 12 May 2013

Many EDS sufferers also have Fibromyalgia, this post is dedicated to helping to raise awareness about this condition as today is its National awareness day. A massive thank you to Bee Anne for collecting the information. If you'd like to find out more about Fibromyalgia or are interested to see how you can get involved please see the links at the end of the post. A...

Friday, 10 May 2013

Our first #EDSawarenessmonth blog post is dedicated to the different types of EDS that people have. Although some are more common forms than others and many have overlapping symptoms and this is how the different types are considered and defined. Classical - the skin is stretchy, soft, fragile and elastic. The joints are loose and flexible. Hypermobility - the...

Sunday, 5 May 2013

As May is EDS awareness Month every friday we will post a new blog post with updates about how people from across the world are helping to raise awareness! We'll hopefully be featuring all kinds of content from poems, to personal stories, events to images.... So if you're helping to raise awareness about EDS this month please what you're doing by sending us an email...