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Saturday, 19 July 2014

People with invisible conditions are often told things that are meant well but are actually a bit annoying. I don't mean this to sound ungrateful as I know people don't mean to offend and do wish others well but sometimes it wouldn't do any harm to think before they speak. So here is our top 5 list of phrases that we think people should think about before saying. 1. "But you don't look sick" Too many of us hear this phrase too often, it's common to hear this from people when your disability...

Friday, 6 June 2014

To kick off our new series of 'Top 5' blog posts we thought we'd start with our top 5 (well 7, we couldn't pick just five) functional father's day gift ideas! Father's day is on June 15 this year in the UK so we thought we'd post this pronto so you have plenty of time to get your gifts! (1) The Slanket Many of you may have already heard of this comfy blanket...

Friday, 30 May 2014

This week's blog post is dedicated to a few of the upcoming disability conferences across the world... Below is more information about some of the disability conferences that may be happening near you! This information was courtesy of Home Healthcare Adaptations,  for more information about their services please see their website. ...

Friday, 11 April 2014

Disabilities Don’t Define You Facing life with a disability can be a challenge. Uneducated or dismissive people may discount you as a member of society, or you may feel infantilized or marginalized by well-meaning family or friends. However, you do not have to allow your disability to define you. You are a person with a disability, not a disabled person. While you...

Friday, 28 March 2014

In six days this UK born viral craze of #nomakeupselfies (women posting pictures of themselves with no make up) raised a staggering 8 million pounds for Cancer Research UK. The idea behind this is that women post their #nomakeupselfies and men their #makeupselfies on social networking sites along with a caption saying that they donated to the charity by texting in which...

Saturday, 15 March 2014

Having just lost a close family member to a battle with cancer, i'd like to dedicate this week's post to the support and care that the Marie Curie nurses provide for those with terminal illnesses. The nurses and staff at Marie Curie have continually helped us as a family throughout this difficult time and for them to continue to help many more families in this situation they...

Thursday, 6 March 2014

The 28th February 2014 was international Rare Disease Day with over 70 countries across the world hosting events and activities to help raise awareness about rare and invisible diseases. So I thought i'd share some of the events with you! For a full list of events that went on and the success that they had please visit the Rare Disease Day Website. Official Video In...

Friday, 14 February 2014

Message from the Blogger... Dear Readers, I've been meaning to write a post like this for a while giving you all an update about this blog and why I love writing it. As you can see by my old posts Snippet of my life - Part 1 and Snippet of my life - Part 2 (which I wrote back in 2011 around the time when I set this blog up - so please don't judge them) the part...

Friday, 31 January 2014

In 4 weeks time on February 28th 2014 it is international rare disease day organised by Eurodis. In the run up to this day various events and promotional campaigns are taking place to help raise awareness about invisible conditions. To find out more about the day and to see the all the easy and simple ways that you can get involved just read the rest of this blog...

Friday, 17 January 2014

This week's blog post features HandiNews International a useful website for people with all kinds of disabilities. We asked them a few questions about what HandiNews is all about so that we can share them with you! _______________________________________________________ The Disabilities Meeting Place to Share and Help Each Other www.handinewsinternational.com What...

Friday, 3 January 2014

Firstly, I'd like to wish you all a very happy new year and hope you've had a great start to 2014! Without trying to sound very cliché by saying 'New year, new me (blog)' I would like this year to be a new start for this blog... I started this blog back in 2011 as a platform to reach out to those with invisible disabilities & to educate others about existing invisible conditions which most of us are unaware of. When I was diagnosed with an incurable, inherited condition called Ehlers Danlos...