Bright Idea!

Because there is little awareness about EDS and HMS in the UK, I got my thinking cap on and thought of ways I could fundraise for a charity organisation that has helped me greatly 'The Hypermobility Syndrome Association'. (HMSA) http://www.hypermobility.org/ I asked fellow EDSers on facebook for fundraising ideas and the response was great. Ideas such as sponsored snooker marathons, x factor nights, bungee jumping etc all sprung to mind. All of them sounded fantastic but to...

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More youtube videos

Below is a song that sums up how you can feel if you have an invisible disabilit...

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A snippet of my life (part 2)

So its only 4:49pm and I have already retired to my bed zzz. Aching joints after a long day at college means one thing, time for a hot bath and then rub some soothing lotion on my joints! Haven't had a hospital appointment in a few months now, makes a change from the practically weekly visits - however I do feel a tad lost in the system. The best hospital treatment I...

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Dear Loved One...

"Dear Loved One, I am sending this letter to help you understand my feelings as I deal with HMS/HEDS and the changes it brings to my life. I am scared. I don't know what the future holds for me. Will I end up disabled, in a wheelchair or will I be one of the lucky ones. If you find me being quiet and reflective, please don't think I am upset with you. I am trying to sort out my fears. I am angry. HMS/HEDS has taken so much away from me. I can no longer do many of things I enjoy doing. I sometimes...

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HMS in the Press!

Here are some articles I have stumbled across about Hypermobility Syndrome (EDS type 3). http://www.express.co.uk/posts/view/272391/How-I-learned-to-live-with-my-bendy-body http://www.mirror.co.uk/celebs/news/2010/05/21/cherylee-houston-makes-history-as-coronation-street-s-first-disabled-actress-115875-22276037/ Check them out! Got any news stories? Either post them in a comment or send them to hideandseekid@hotmail.co.uk to be featured on this blog...

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RIP Alexa Simmons

A fellow EDSer and 'Zebra' lost her lifelong battle to the condition not long ago. She had many friends with the condition and will be sadly missed by us all, but never forgotten. RIP Alexa Simmons <3 Image created by Rhiannen in memory of Alexa....

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