Making her invisible... visible! - Fundraising Event

"Emma Sanderson returned from holiday with a bug which became an unusual illness which she wants to help others to conquer via a charity dinner Emma Sanderson’s growing up in Longridge was as normal as anyone’s – school at the CE primary and then Longridge High where she gained great results before studying A-levels at Clitheroe Royal Grammar.Now, aged 21, she works at the primary school at lunch times and is a volunteer helper every Thursday at St Paul’s Walkie Talkies children’s group.However,...

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Bracelets - INVISIBLE NO MORE

Click here to order your bracele...

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Book: "But You LOOK Good" by Wayne Connell

Do your loved ones have a hard time understanding your chronic illness or pain, because to them you LOOK fine? But You LOOK Good! is a 56 page book that gives those living with chronic illness and pain a voice about how they feel, what  they need and how others can be an encouragement to them. It is a convenient, informative way to educate loved...

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"But You LOOK Good"

Wayne Connell - Founder and President of Invisible Disability Association (IDA)"Have you ever shared details about your chronic illness and pain and the difficulties you experience daily, and had a person say in response, “Well, but you LOOK good?” Many people have experienced this situation and heard similar phrases that seem harmless, unless you are the one who would give up “looking good” any day to have moments of feeling good.Do you ask a friend or family member living with chronic illness...

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'You Don't Look Disabled'

At 24, Holly Ferrie has to cope with disruption to her life on a scale few of her age could recognise. A complex and as yet not fully diagnosed arthritis-related condition causes her almost constant pain in her legs and feet. On occasions, her legs are seized by agonising spasms.Yet Ferrie fears she doesn’t seem disabled enough. People who don’t know her, she says, find it hard to comprehend the severity of a condition that afflicts someone so young and is not immediately obvious. “They either...

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#PrayForMuamba

Fabrice Muamba a 23 year old footballer was rushed to hospital yesterday (17/03/12) after what appears to have been a heart attack on the pitch in front of 36,000 spectators in the UK. Muamba is now in a critical condition in hospital. We pray for Muamba and his family and hope that he has the strength to pull through. Former team mate Gary Cahill #PrayForMuamba&nb...

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Fibromyalgia: An 'invisible' disability

"You look fine...." Such words are usually intended as a compliment. Sometimes they provide reassurance. But they can also produce confused feelings when someone is silently suffering. This problem is not unique to fibromyalgia. Parallels are easily drawn with other conditions with controversial diagnoses and uncertain cause, such as chronic fatigue syndrome, posttraumatic stress disorder, and premenstrual syndrome. These disorders can be considered "invisible" disabilities because they are virtually...

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Jillian's EDS Video

A new video created to educate others about EDS. Thanks Jillian...

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Rare Disease Day 2012

On the 29th February, the Royal Holloway University of London hosted the largest UK rare disease day event. Here are some images about the day and how it helped to raise awareness about rare diseases. As the images show there was a great turn out at the event including "Helene, who suffers from rare disease Ehlers-Danlos Syndrome, made history by becoming the first woman to win a Paralympic gold in the arms-only single sculls for Great Britain." To read more about the day click here Share...

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