Disability Magazines...

As mentioned previously, I subscribe to the HMSA magazine/newsletter because it is relevant to my condition. Likewise there are publications out there that are specifically designed for those with particular conditions. I have recently come across a few generic disability magazines available to all and thought I would share them with you... 1. Disability Now - www.disabilitynow.org.uk A...

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Are you a disabled Entrepreneur?

We have come across this website created to inspire and encourage Disabled Entrepreneurs. The site features Inspiring Stories, the latest news as well as much much more... Check out the website: www.disabledentrepreneurs.co.uk Also, from having a read of some of the Inspiring Stories myself I have come across some more links that may be of some use to you. I have shortlisted the links below. Do you need equipment but are weary of the expensive costs? Check out the second...

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EDS fundraising!

A few links that would appreciate your donations, every penny counts! Thank you. http://www.crowdrise.com/carolynryanphotography/fundraiser/CarolynRyan http://hypermobilitycampaign.blogspot.com/ ...

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Gym gets Mandy walking tall this Christmas...

Check out Mandy's inspiring story... http://thewaterside.net/2011/12/gym-gets-mandy-walking-tall-this-christmas/ Well done Man...

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Twitter!

If you want the latest links and snippets of useful info then follow us on twitter at @hideandseekid https://twitter.com/#!/hideandseekid  For instant access to other charities and helpful peopl...

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Crippen!

Stumbled across a Crippen 'Probably the greatest disabled cartoonist in the world'! Check out his work at http://www.crippencartoons.co.uk/index.shtml And his blog at http://www.disabilityartsonline.org.uk/?location_id=6...

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Last Day!

Last Day! If you haven’t already please click the link and press ‘back this idea’ to help me raise money for some very worthy EDS charities and to raise awareness about invisible disabilities, thanks and thank you to everyone that has already voted!  http://www.thestake.co.uk/ideas/i-m-17-and-want-to-raise-money-for-two-ehlers-danlos-syndrome-charities-and-raise-funds-for-my-invisible-disability-blog The competition ends today so please get clicki...

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Tim's Link - 9 Greatest inventions for the Physically Impaired

To go to the link Please click here The link suggests what the 9 greatest inventions are for those who are physically impaired so if you would like to know more about the following click on the above link! 1. Braille2. Walker3. Flex-Foot feet4. Cochlear implant5. Rewalk Exsoskeleton6. Mechanical Layrnx7. Text Telephones8. Car Hand Controls9. Colour identifie...

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RIP

A message to ensure we keep in our hearts all those that have sadly lost their battle to EDS and other invisible disabilities. RIP May we especially remember... Alexa Simmons Susan Wade Amanda Corbett Eric Bachmann Amy Mak Kimberlee Jett Grace Helen Reid Crystal Reid David Bowen George Miller Kara Engell Doug Phillips Canton Barry Newberry Irene Newberry Brian Newberry Susan...

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You know you're a Zebra when...

--You ache from head to toe and you're too exhausted to move...but you still look great! -- You can hobble like an old woman from the disabled parking bay to the store and people still give you dirty looks. ... -- The question, "Where are my keys?" has been answered with, "In the sink, where you left them." -- You explain EDS to someone...and they don't believe you and tell you that's too weird to be a real illness. -- You can absent-mindedly put the cereal box in the fridge...after also absent-mindedly...

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The Spoon Theory

The Spoon Theoryby Christine Miserandino www.butyoudontlooksick.comMy best friend and I were in the diner, talking. As usual, it was very late and we were eating French fries with gravy. Like normal girls our age, we spent a lot of time in the diner while in college, and most of the time we spent talking about boys, music or trivial things, that seemed very important at the time. We never got serious about anything in particular and spent most of our time laughing. As I went to take some of my...

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11 days!

Only 11 days for all you facebookers to press 'back this idea' to help raise money for two invisible disability charities! Thanks to everyone who has backed my bid so far, if you haven't yet please do, anyone on facebook can vote and it just takes a few moments of your time! Click the link below: http://www.thestake.co.uk/ideas/i-m-17-and-want-to-raise-money-for-two-...

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Facebook us!

We have set up a new facebook page. Simply search HideandSeek Disabilities and like our facebook pag...

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Chance to win £15,000 for Invisible Disabilities!

Are you on facebook? Then you can back my application to win £15,000 to split between two EDS charities and funding developments and support for those with invisible disabilities! With just a few simple clicks you can give me 'stakes' and help me get through to the next round! By completing challenges you will be able to add up to 6 stakes. Please click the link below to support me and this cause! Thanks! http://www.thestake.co.uk/ideas/i-m-17-and-want-to-raise-money-for...

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Bending without Breaking!

I've just discovered this book called "A Guide to Living with Hypermobility Syndrome: Bending without Breaking" and i read it cover to cover in no time, literally couldn't put it down! So many parts of the book that I can relate to and thought it would be useful to share with you all! If you suffer with HMS then I strongly recommend you buy it! Here is a link to where you...

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£10,00 for EDS charities!

I am entering a competition for the chance to win £15,000! £10,000 of which will go towards two EDS charities and some of the other £5,000 I shall use to help raise awareness about invisible disabilities such as by funding this blog! If you're on facebook, YOU can 'back' my application so that it gets shortlisted to the final round! I am currently applying and shall keep you updated when the wheels are in moti...

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Get Active!

Ways you can get involved with raising awareness about invisible disabilities! Check out this blog: http://50kforawareness.blogspot.com/ and the facebook page for it: 50k for awareness. Also, if you're on facebook check out the link below: COLLECT AND SAVE USED STAMPS FOR EHLERS DANLOS SUPPORT...

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Invisible Disability Association - Share your story!

The Invisible Disability Association want you to share your story with others! Simply go to their website and join for more details about submitting your story! Matt Barrett's extremely inspiring story! Please watch...

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HMSA newsletter!

I subscribe to the HMSA newsletter and find it very useful! New editions are published every 3 months or so if you're based in the UK you can subscribe too, just click on the link ^. If you're not based in the UK I'm sure there are publications that offer a similar service and if you know of one please let me know so I can feature it on here! The newsletter...

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Cadbury Chocolate Donation!

Previously I mentioned that I was thinking of fundraising ideas to raise mone for HMSA and i decided on a raffle. I asked cadbury world if they could donate anything for my raffle and they kindly posted me a family ticket for four to go to Cadbury World! This will be a great prize for my raffle. Thanks Cadbury...

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Error! Ooops.

Ooops.. I meant to inform you of this a while back, completely slipped my mind! If you're in London and fancy popping down to Covent Garden on 6th November to see a fashion show to raise money for EDS check out the link below! Click here: Ehlers Danlos Fashion Show! There will also be stalls selling items and champagne and drinks available throughout the d...

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Where have I been hiding?

Had a fair bit going on recently, which i shall keep you all posted about soon! Lots of new posts coming about invisible disabilities... when i'm not so... tired... zz...

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Bright Idea!

Because there is little awareness about EDS and HMS in the UK, I got my thinking cap on and thought of ways I could fundraise for a charity organisation that has helped me greatly 'The Hypermobility Syndrome Association'. (HMSA) http://www.hypermobility.org/ I asked fellow EDSers on facebook for fundraising ideas and the response was great. Ideas such as sponsored snooker marathons, x factor nights, bungee jumping etc all sprung to mind. All of them sounded fantastic but to...

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More youtube videos

Below is a song that sums up how you can feel if you have an invisible disabilit...

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A snippet of my life (part 2)

So its only 4:49pm and I have already retired to my bed zzz. Aching joints after a long day at college means one thing, time for a hot bath and then rub some soothing lotion on my joints! Haven't had a hospital appointment in a few months now, makes a change from the practically weekly visits - however I do feel a tad lost in the system. The best hospital treatment I...

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Dear Loved One...

"Dear Loved One, I am sending this letter to help you understand my feelings as I deal with HMS/HEDS and the changes it brings to my life. I am scared. I don't know what the future holds for me. Will I end up disabled, in a wheelchair or will I be one of the lucky ones. If you find me being quiet and reflective, please don't think I am upset with you. I am trying to sort out my fears. I am angry. HMS/HEDS has taken so much away from me. I can no longer do many of things I enjoy doing. I sometimes...

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HMS in the Press!

Here are some articles I have stumbled across about Hypermobility Syndrome (EDS type 3). http://www.express.co.uk/posts/view/272391/How-I-learned-to-live-with-my-bendy-body http://www.mirror.co.uk/celebs/news/2010/05/21/cherylee-houston-makes-history-as-coronation-street-s-first-disabled-actress-115875-22276037/ Check them out! Got any news stories? Either post them in a comment or send them to hideandseekid@hotmail.co.uk to be featured on this blog...

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RIP Alexa Simmons

A fellow EDSer and 'Zebra' lost her lifelong battle to the condition not long ago. She had many friends with the condition and will be sadly missed by us all, but never forgotten. RIP Alexa Simmons <3 Image created by Rhiannen in memory of Alexa....

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Jillian's production!

A fellow EDS sufferer created this video to inform others and raise awareness, click the link!...

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Sara's EDS info!

Really useful info about EDS and what it is like to live with, thanks Sara...

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From one blog to another!

Here is a link to another great blog that gives informs about what life is like with invisible disabilities like EDS, Dysautonomia etc from the perspective of someone who has the conditions. Take a peek! http://potsville.wordpress.c...

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Tweet tweet!

I've set up a twitter so that info and advice about Invisible Disabilities can be shared on there.. Follow and tweet us at @hideandseekid Tweet twe...

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Peter's useful links - Hidradenitis Suppurativa

Up until recently I knew little about the condition Hidradenitis Suppurativa (hope I spelt that right) otherwise known as HS but Peter has found two useful links to share with any HS suferrers that need that extra bit of guidance and support... Perspective of a HS sufferer http://ratt1962.blogspot.com/2006/02/hidradenitis-suppurativa-need-for.html Facebook group - Hidradenitis Suppurativa Friends http://www.facebook.com/home.php?ref=hp#!/groups/123675434400466/?id=125486554219354&notif_t=group_activity Thanks...

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Get involved!

Do you have an invisible disability? Want to share your story, images and useful links? Or just offer general advice? Then get involved! Email your contribution to the blogs email address at hideandseekid@hotmail.co.uk and I'll post your contribution asap! More stories coming soon...

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Sara's suggested links...

Thanks for suggesting these links Sara :) , i've had a browse and they most definitely should be shared on this blog! Website: http://www.ednf.org/ Website: http://www.cedsa.org/  Website: http://www.ehlersdanlosnetwork.org/ Thanks Sara! Make sure you check them ou...

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My youtube likes!

Some youtube links that help explain about EDS... have a gander! ...

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My useful links!

Just thought I'd share some links with you guys that have helped me with my condition :), you never know they may help you! The Hypermobility Syndrome Association  Website: http://www.hypermobility.org/ - I've found this site very informative and a great way to hear about how others cope! Zebras For Life - a great facebook group to chat to others with EDS! EDS...

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Why set up this blog?

So what's the point of this blog? It's not to rant and rave (although I probably will a little) or to get others to 'feel sorry for me', not atall. It's to educate others about EDS and for me to learn more about other invisible disabilities. I'd like this blog to be a support network where those who suffer from invisible disabilities can share advice and tell their stories to others that may be in a similar situation or may just be interested in learning more... Essentially, it's an easy...

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A snippet of my life...

Hi, my name is Abi and i'm from the UK. I'm pretty 'normal' in the sense that I love spending time with my friends and family whethere it be going out or just chilling out and I like my sports. Physically I look 'normal' but I have an invisibile heridatory condition called Ehlers Danlos Syndrome (EDS) which I was finally diagnosed with in June 2010 after 7 years or so of suffering from the symptons. Although my condition is a part of me, it in no way defines me, so i'm experimenting with...

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