Our (early) New Years resolution!

We are very sorry for the lack of posts and content recently but there will be a big update coming soon explaining our absence! We will relaunch the blog in January and will post every Wednesday of each week! In no way has his blog or this cause been forgotten! Stay tuned for future update...

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#iiwk12 - Day 2

Social Sites Today's post will be about the various social platforms that you can check out to help raise awareness for Invisible Illness Week. As mentioned yesterday you can check out their twitter and Facebook page, but what can you say? Well here you can draw up some inspiration from some of the many blogs featuring posts about the Invisible Illness...

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#iiwk12 - Day 1

Sorry for the lack of posts recently.. but like many of you we have been engrossed with the success of the paralympics! Just before we get on to the main topic of today, we'd like to echo all of those comments and congratulate all of the Paralympian athletes that took part in the game, they were a true inspiration to all!  Some of you may know that...

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News On Wheels

Before I explain more about 'News On Wheels'.. here is a quick social network update from HideAndSeek. Make sure you follow us on twitter: @hideandseekID Like our Facebook Page: HideAndSeek Disabilities Drop us an Email: hideandseekid@hotmail.co.uk  News On Wheels... News On Wheels is an iniativie set up by Blake Leitch who is trying to encourage...

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Over Abled - Paralympics

Paralympic 4 - Channel 4 HQ, broadcasters of the Paralympics Games. Although everyone is a bit blue about the Olympics finishing we still have the paralympics to look forward to, which starts tomorrow! I've been sporting my 'over abled' t-shirt courtesy of Channel 4 and the Paralympic Games. I'll definitely be supporting Team GB in the Paralympic Games...

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Without A Diagnosis Documentary

With our technical issues sorted, our blog is back up and running with new posts up every Friday! This week we have a special feature about Without A Diagnosis. I know that many of you can relate to the uncertain scenario of not having a diagnosis for your condition (it took me 16 years to be diagnosed!). After frequent trips to the hospital either us or...

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Linky the EDS Horse!

A few weeks ago a competition took place for people to enter their designs of a horse to help raise awareness for a certain concept they believe in and the design of the winning horse will be on public display in Bristol for a few months to raise awareness.  Once the entries were in, all people had to do was to vote on Facebook by liking the picture...

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#iiwk12 - my 30 things meme

Update: From now on there shall be new posts up every Tuesday and Friday. 30 things you probably didn't know about me.. Copy and paste and tell others more about yourself. Taken from www.invisibleillnessweek.com 1. The illness I live with is: Ehlers Danlos Syndrome Type 3. 2. I was diagnosed with it in the year: 2010 3. But I had symptoms since:...

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Invisible illness week 2012 - September 10th - 16th

About Invisible Illness Week 2012 September 10-16, 2012 is National Invisible Chronic Illness Awareness Week. This annual event, started in 2002 by Lisa Copen, features a variety of ways to get involved including a virtual conference September 10-14 online for free with speakers. Below are some videos from the Invisible Illness week campaign Stay...

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Mimi's EDS Story

Sorry for the absence of posts recently... but more updates and posts are to follow soon! Please watch the video below showing Mimi Newman telling her story about life with EDS and how she is trying to raise awareness about the condition. Follow us on twitter: @hideandseekid ...

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Why the Zebra?

Why do we see zebras when reading about rare and invisible conditions like EDS? Good question...  In medical school, students are taught to diagnose patients based on the condition that’s most likely.  This makes sense.  Why attempt to diagnose something rare when the answer is right under your nose? This idea goes along with the saying: When you hear...

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May is Ehlers Danlos Awareness Month!

May is Ehlers Danlos Syndrome awareness Month! This is an invisible condition that I suffer with and little is known about it around the world not only amongst the public but also professionals. Below is more information about EDS taken from the EDNF website. What is EDS? Individuals with EDS have a defect in their connective tissue, the tissue that provides...

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#invisibledisabilities - Part 1

Here is some invisible disabilities that we learnt a bit about on our #invisibledisabilities day! Myalgic Encephalomyelitis (ME) - ME is recognised as a neurological illness by the World Health Organisation. It is a real, often relapsing, debilitating illness, affecting up to 150,000 people in the UK, with similar rates of incidence in Europe, USA,...

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10,000 hits!

On Friday 4th may, our #invisibledisabilities day we reached 10,000 hits on the blog! Thanks so much for everyone who supported us and got involved, helping us to reach our target. We're now well on our way to the 11,000 mark and 20,000 is our next goal! Keep posted as there shall be many updates to come about invisible conditions.  Keep spreading the word about...

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TOMORROW! #invisibledisabilities

Tomorrow is our #invisibledisabilities day, so if you're on twitter use the hashtag #invisibledisabilities all day if possible but mainly at 6pm (BST) to help raise awareness about all kinds of invisible conditions! If you're on facebook, google+, pinterest, or whatever social network you're on, talk about the #invisibledisabilities initiative and educate others...

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#invisibledisabilities day template!

Yesterday, Saturday 21st April, I was part of a group of about 20 people that initiated a worldwide trend. If we can get as much twitter coverage as possible on Friday 4th may and tweet with #invisibledisabilities we can help raise awareness about all the invisible conditions! PLAN: At 6pm GMT on Friday 4th May tweet with #invisibledisabilities to raise...

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Plan: 4th May #invisibledisabilities day!

We can't find a specific day that is dedicated to Invisible Disabilities! So we created our own one. 4th May is our #invisibledisabilities day! Aim: Raise awareness about invisible disabilities Who: You and everyone else we can get on board! How: In the lead up to the 4th May and definitely on that day tweet with the #invisibledisabilities - and educate others about...

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Alphabet Initiative - A

There are loads of Invisible Disabilities out there that we know little about so we want you to educate us about your condition! We're starting with the letter A, if you have any of the below drop us an email describing your condition and how it affects people! ADHDAnxiet DisordersArachnoiditisAsperger SyndromeAutis...

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This is why we need to raise awareness!

"I've learned now how it's quite common for the parents of EDS sufferers to be accused of child abuse but, at the time, it came across as quite scary." "A MOTHER was suspected by social services of abusing her children – until they were diagnosed with a rare disease which makes them susceptible to bruising and bleeding. Abi Willshee said she was "very worried"...

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3rd April: Meeting about filming for EDS and Chronic awareness!

I've been invited to meeting in London on Tuesday 3rd April about filming a campaign video about how chronic pain and EDS affects people to raise awareness. Once filmed the video shall be featured on the UCH website for all to access including teachers, parents and pupils. In the meeting we shall discuss how life with chronic pain and EDS affects us. So if you suffer with...

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Making her invisible... visible! - Fundraising Event

"Emma Sanderson returned from holiday with a bug which became an unusual illness which she wants to help others to conquer via a charity dinner Emma Sanderson’s growing up in Longridge was as normal as anyone’s – school at the CE primary and then Longridge High where she gained great results before studying A-levels at Clitheroe Royal Grammar.Now, aged 21, she works at the primary school at lunch times and is a volunteer helper every Thursday at St Paul’s Walkie Talkies children’s group.However,...

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Bracelets - INVISIBLE NO MORE

Click here to order your bracele...

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Book: "But You LOOK Good" by Wayne Connell

Do your loved ones have a hard time understanding your chronic illness or pain, because to them you LOOK fine? But You LOOK Good! is a 56 page book that gives those living with chronic illness and pain a voice about how they feel, what  they need and how others can be an encouragement to them. It is a convenient, informative way to educate loved...

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"But You LOOK Good"

Wayne Connell - Founder and President of Invisible Disability Association (IDA)"Have you ever shared details about your chronic illness and pain and the difficulties you experience daily, and had a person say in response, “Well, but you LOOK good?” Many people have experienced this situation and heard similar phrases that seem harmless, unless you are the one who would give up “looking good” any day to have moments of feeling good.Do you ask a friend or family member living with chronic illness...

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