The Jolt Trust Charity

If you read our inspiring guest blog posts from Emily Yates you'll be familiar with the charity organisation she mentioned called Jolt Trust. We're really interested in what this small charity offer to disabled people and what they have already achieved. So we'd like to share some more info about the Jolt Trust movement with you... "Since 1983, the Journey of...

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Emily Yates: Q+A - Part 2

After reading about Emily's incredible story so far we decided to ask her some questions about her involvement at London 2012 and what her plans are for the future. Here is our short Q+A session with her... 1. As a wheelchair user, how did you find the facilities and accessibility at The Games? I thought it was incredible.  Not only were the facilities great,...

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Emily Yates: 'Journey of a Lifetime' - Part 1

- Emily and Seb at London 2012 - Emily and her friend Tom with  The One Show's Alex Jones Me and my twin sister, Lucy were born 10 weeks prematurely, and later diagnosed with Cerebral Palsy, after not being able to walk for quite a while when we were young.  My early memories are of constantly walking up and down the stairs at our local Children's Development...

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INVISIBLE DISABILITIES #1: Fibromyalgia

As part of our attempt to raise awareness about all invisible conditions we're starting off with Fibromyalgia... So what is Fibromyalgia? Fibromyalgia is a chronic condition of widespread pain and profound fatigue. The pain tends to be felt as diffuse aching or burning, often described as head to toe. It may be worse at some times than at others. It may also change location,...

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INVISIBLE DISABILITIES: Branching Out!

We're aware that a lot of our content has been about invisible conditions that we're most familiar with, that's why we want to branch out and not only educate others but also educate ourselves about the invisible conditions that we know little about! To do this, we shall feature weekly content about all kinds of conditions with a new post being uploaded every Sunday. Some...

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UPDATE: Blog Relaunch!

Hello All...  This is just a quick message to say sorry that we've been a bit quiet the last few weeks on all of our social platforms we're currently working on the re-branding and relaunch of our blog for you guys (as you can see by our new blog layout, what do you think?) We're working on some exciting projects and collaborating with some great people which...

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EDS Awareness Month - Week 3 - Awareness Videos

As part of EDS awareness month many of you have been doing your bit by creating videos and putting them up online to share with others. There have been so many contributions so it has been really hard shortlisting some of our favourites to share with you but here they are! British TV Soap Opera - Coronation Street:  Cherylee Houston who plays Izzie Armstrong in Coronation...

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EDS Awareness Month - Week 2 - EDS Symptoms

This week's post is dedicated to some of the main symptoms that people with EDS suffer with.  Hypermobile joints People with EDS typically have loose joints, which means the limbs bend more than usual. This can cause floppy joints in infancy, and some affected children take longer to sit, stand and walk. Hypermobility EDS is the most common form....

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Guest Post: Fibromyalgia Awareness Day!

Many EDS sufferers also have Fibromyalgia, this post is dedicated to helping to raise awareness about this condition as today is its National awareness day. A massive thank you to Bee Anne for collecting the information. If you'd like to find out more about Fibromyalgia or are interested to see how you can get involved please see the links at the end of the post. A...

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EDS Awareness Month - Week 1 - The Types of EDS

Our first #EDSawarenessmonth blog post is dedicated to the different types of EDS that people have. Although some are more common forms than others and many have overlapping symptoms and this is how the different types are considered and defined. Classical - the skin is stretchy, soft, fragile and elastic. The joints are loose and flexible. Hypermobility - the...

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May is #EDS Awareness Month!

As May is EDS awareness Month every friday we will post a new blog post with updates about how people from across the world are helping to raise awareness! We'll hopefully be featuring all kinds of content from poems, to personal stories, events to images.... So if you're helping to raise awareness about EDS this month please what you're doing by sending us an email...

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Find Me Good Care.

Find Me Good Care ... Find Me Good Care is a free online resource launched at the end of last year by the Social Care Institute for Excellence (SCIE) – a national charity established to improve care across the UK. This week's post is dedicated to Find Me Good Care, a charity that aims to help people in their struggle to find the good quality care that their family...

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Rare Disease Day 2013

This is a post to remember the success of Rare Disease Day 2013 where over 70 countries across the world took part in a variety of ways to help raise awareness about rare diseases. This post will showcase some of the events and highlight the success of the day! But first...  So, what actually happened? On 28th February, thousands of people across 71 countries...

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Disabled Drivers - Honda Motability Scheme

“Over 500,000 people currently lease a car through the Motability scheme. It enables you to turn your government-funded mobility allowance into a brand new Honda.” - Honda UK Website Many disabled people face daily struggles and burdens with what lots of people class as everyday ordinary life. One of those struggles may be transportation. Those with either physical...

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Rare Disease Day 2013!

"February 28, 2013 marks the sixth international Rare Disease Day coordinated by EURORDIS and organised with rare disease national alliances in 24 European countries. On and around this day hundreds of patient organisations from more than 60 countries and regions worldwide are planning awareness-raising activities converging around the slogan “Rare Disorders without...

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Why so quiet?

This is just a quick blog post about why this platform has been so quiet in recent months...  Like many of you, my life has been hectic over the Christmas period! I recently started University, moved out of home for the first time and celebrated my 19th Birthday. However, with 2013 bringing in a new year, I aim to keep the weekly blog posts going for as...

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It's 2013 - Welcome back!

Hello everyone! First of all, i'd like to apologise for the significant lack of posts in recent months, the reasoning behind this shall all be explained in an upcoming blog post. However, we're back now with weekly content being uploaded! That's right...  a new blog post will be uploaded every friday 1pm UK time!  I'm looking for your suggestions and contributions...

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